Announcing the first Australian study of adults living with Fragile X syndrome. From early 2024, our collaboration with Centre for Disability Studies (at University of Sydney) will:
* Explore the need for and effectiveness of supports for the ADULTS, particularly those in residential care / group home settings
* Explore the need for and effective supports for CARERS of the adults living at home, eg supports for future care planning and transition in later life
* Produce best practice information resources and care strategies for the disability and aged care workforce
* Generate recommendations and advocate for health policy and practice improvements.
From our FX Research Roundup webinar 13 July 2023.