Ehlers-Danlos syndromes: Current landscape and hopes for future directions
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Descripción
Ehlers-Danlos syndromes (EDS) are thirteen subtypes of rare connective tissue disorders characterized by numerous debilitating symptoms, including chronic pain. Sadly, current gaps in dedicated health care and research for EDS...
mostra másOn this month’s episode of the Pain Waves podcast, we’re joined by three guests to learn more about these chronic illnesses. Dr. Nimish Mittal tells us about what Ehlers-Danlos syndromes are, the current gaps in health care and research, and what changes need to be made in the Canadian health care system to better support people living with EDS. We’re also joined by Kathleen Eubanks from EDS Canada, who shares her firsthand experience of living with the illness, and Sandy Smeenk from the ILC Foundation, who shares her professional and personal experiences as a mother to a child with EDS.
Resources mentioned in this episode:
- EDS Society: https://www.ehlers-danlos.com/
- EDS Canada: https://ehlers-danlossyndromecanada.org/
- The ILC Foundation: https://www.theilcfoundation.org/
- GoodHope EDS Clinic: https://www.uhn.ca/MCC/Clinics/Ehlers-Danlos_Syndrome_Clinic
Información
Autor | Pain Waves by Pain BC |
Organización | Pain Waves by Pain BC |
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