PHEFREE: Sharing Patient Stories About the Early Years Following Newborn Screening for Phenylketonuria
24 de oct. de 2024 ·
1m 47s
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Descripción
New research from the Phenylalanine Families and Researchers Exploring Evidence (PHEFREE) Consortium. This summary is based on a paper published in the American Journal of Medical Genetics on September 17,...
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New research from the Phenylalanine Families and Researchers Exploring Evidence (PHEFREE) Consortium. This summary is based on a paper published in the American Journal of Medical Genetics on September 17, 2024, titled "Perspectives and Insights Into Phenylketonuria: Patient Narratives About the Early Years Following Newborn Screening."
Read the paper here: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.32110
Learn more about PHEFREE: https://phefree.rarediseasesnetwork.org
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Read the paper here: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.32110
Learn more about PHEFREE: https://phefree.rarediseasesnetwork.org
Información
| Autor | RDCRN |
| Organización | RDCRN |
| Página web | - |
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