Sook Yee

"My son started painting when he's 2 years old, and we use that as a therapy." --Sook Yee.

Sook Yee is a Malaysian mom whose son has SMA. Doctors believed her son had only one year to live. Now that her son just celebrated his ninth birthday, Sook Yee finds a way to empower people in her SMA advocacy.

Sook Yee explains how she inspires parents in Malaysia with children with SMA.

Here are the highlights of her interview:

Practising the best standard of care is vital to every child’s journey with SMA
Motivating her son to enjoy his past time, such as painting, and made that a symbol to inspire others
Raising funds from his son’s paintings with the help from Unicef and Petronas in Malaysia
Taking advantage of radio and newspaper to spread information on the best standard of care for SMA
Continued search on websites and countries containing information dealing with SMA
Giving importance on attending SMA conferences to connect to people with the same experience

Sook Yee’s son has no Facebook page yet but they were able to set up a Facebook group called “Brandon Growing Up with Spinal Muscular Atrophy”.

Discover more in this podcast how Sook Yee is inspired her by her son’s happy disposition to continue her amazing advocacy of SMA. Sook Yee can’t wait to share valuable information on SMA management in May next year for SMA Australia conference.

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