UCDC: Assessing Health-Related Quality of Life in Children and Adults with Urea Cycle Disorders
14 de nov. de 2023 ·
1m 52s
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Descripción
New research from the Urea Cycle Disorders Consortium (UCDC). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on September 8, 2023, titled "Health-related...
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New research from the Urea Cycle Disorders Consortium (UCDC). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on September 8, 2023, titled "Health-related quality of life in a systematically assessed cohort of children and adults with urea cycle disorders."
Read the paper here: https://www.sciencedirect.com/science/article/abs/pii/S1096719223003268?via%3Dihub
Learn more about UCDC: https://ucdc.rarediseasesnetwork.org
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Read the paper here: https://www.sciencedirect.com/science/article/abs/pii/S1096719223003268?via%3Dihub
Learn more about UCDC: https://ucdc.rarediseasesnetwork.org
Información
| Autor | RDCRN |
| Organización | RDCRN |
| Página web | - |
| Etiquetas |
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